We would like to thank everyone who has sent messages since hearing the news that Brenda had died.
We have been very touched and moved by all your kind words and we feel very supported during this sad time.
Some people have asked about donations in memory of Bren. At her Thanksgiving Service donations were shared between Kings College Hospital Haematology unit and Kingston Haematology day unit.
Bren was also involved with MDS ( Myelodysplacia) support group. We would be grateful if any further donations are made to this charity which supports individuals who have been diagnosed with Myelodysplacia. Further information can be found on their website:- mdspatientsupport.org.uk
Hilary and Heather
LThe Thanksgiving Service to celebrate Bren’s life will take place on
Friday 29 September at 1.30pm
Gorsley Baptist Church
Nr Ross – on – Wye
Family flowers only please.
Refreshments will be served in the Church Hall following the Service.
Hilary and Heather
We are so saddened to tell you that our dearly loved Bren died peacefully yesterday,30 August.
It has been our privilege to care for her in her own home and to be with her. She has been such an inspiration and showed so much courage.
Thank you all for your support and prayers in reading her blog and following her journey
We would like to leave you with a piece of music which was very special to Bren
and gave her comfort.
Hilary and Heather
The Gaelic Blessing
After another stay in Hospital Brenda was finally discharged on Friday 11 . Brenda is extremely weak and fatigued, managing to walk only a very short distance, as she says “she can’t believe how the smallest movement takes so much effort” .
It is an overwhelming fatigue . We are currently caring for her in her home.
On Sunday we took her out in the wheelchair to Bushy Park – it was a lovely summers evening and we all absorbed the peaceful surroundings .
Brenda is experiencing some nose bleeds. Today we are back in Kingston Hospital for platelet and blood transfusions, her bloods will need to be checked twice a week.
She is pleased to be home.
Bren was discharged home from Kings College Hospital on Tuesday after receiving treatment for infections including Pneumonia.
Unfortunately she had to be readmitted to her local Hospital on Wednesday evening following a significant nosebleed. Her cough had been very troublesome but l’m pleased to say that her current treatment has shown improvement. Her temperature has also spiked, she is receiving further antibiotics. She continues to need very regular platelet and blood transfusions. The plan currently is for Bren to be transferred back to Kings College Hospital.
Heather and Hilary
Another update from Heather as Bren has been too poorly to update her blog.
Bren remains in Hospital. In addition to her other infections she developed pneumonia – and had to cope with an very irritant dry cough for some days. With the help of the antibiotics and nebulisers this is now improving.
The treatment plan has changed. Bren was seen by the Doctors this morning and was told that there has been progression of her disease. Unfortunately the DLI infusion is currently not in the plan. Full dose Azacitidine chemotherapy is due to be given this week. She continues to require regular platelets, blood transfusions and fluids. Today a Picc line was put in – this will enable Bren to have all her blood tests and infusions through this line which will give her veins a rest. Her poor hands and arms are so bruised after needing such regular blood tests and infusions so although it is another line l think Bren and the nurses will be relieved!
Hello, just a short update from Heather.
Bren was admitted to Kings College Hospital ten days ago with an infection. She was hoping that it would be short stay but unfortunately it has turned out to be longer.
Bren has been ‘spiking’ high temperatures of 39c + so as you can imagine this has made her extremely fatigued. She is having intravenous antibiotics and regular platelet and blood transfusions plus intravenous fluids.
Professor Mufti visited Bren again this morning and the plan is that they are going to continue with the chemotherapy ( full dose azacitidine) and are going to talk to the transplant team re the possibility of giving another DLI. This is another infusion of my lymphocytes which are currently frozen.
Of course Bren’s main concern is that she is unable to tick off her sixty things ‘to do’ list this year!