We had joint winners for our “Sunflower ” olympics, nurse Mary and volunteer Maureen. Squires garden centre judged the entrants . Heather …. my sister was a
runner up, nurse Becky and Hilary, my other sister came joint losers ! They won a bottle of baby bio and some …. Sunflowers seeds 🌞
We raised 110.00 for leukaemia research, I chose this charity because more than one of us has been affected by leukaemia…. directly or indirectly.
I have made it clear l am not running a Christmas tree growing competition !
I have a variety of charities l have reason to support from my own cancer.
I didn’t know what MDS was when l was diagnosed and l learnt all about this cancer at one of their support meetings.
Most of us know Macmillian nurses give a wonderful service to those that need care at home. They also publish a variety of books that give information to cancer patients ranging from emotional support, the effects of working, fatigue or planning ahead for an unknown future. Macmillian also have drop in centres in some hospitals such as Kings where one can have a cuppa in between appointments, this is a wonderful sanctuary in a hospital !
The rest are self explanatory and l have probably missed some, the point is that l have personally benefited from most of these listed.
Blood wise http://www.bloodwise.org.uk/leukaemia
Kings college hospital Kch.nhs.uk
I was brought up fund raising, Mum and Dad always seemed to be constantly fund raising. We were always involved in one way or another.
The National Health Service is under such financial pressure, we are consistently reminded about this in the news. I get quite upset when people say we have a free service. It is our taxes that fund the NHS. This brings me back to the issue of cost again. As l sit in the day unit l know just my treatment today has cost almost £1000.00
Two units of blood and one of platelets, at approximately 300.00 per unit (thank you blood donors) but the more staggering costs is that of transplants which cost anything from £50,000.00 to £120,000.00. So when I add on the cost of my 9 months in hospital, the cost of the nurses, bed linen, meals, cleaning and everything else that goes with it l know l have been privileged….. not to mention expensive. However that been said, the NHS have now declined to fund 2nd transplants should they be needed. The Antony Nolan trust have estimated 22 patients relapse each year.
With my business head on l can understand why funding for some blood cancers are facing cuts. Cancers which effect so many more people such as breast cancers receive a lot of support but also save so many more.
Quite a dilemma. I wonder how l would feel should l ever need a second transplant.
We are still trying to get Heathers cells into full action in my stubborn body.
Thanks you for your ongoing support, prayers and messages. They do mean a lot to
me and my family.