The following day after l posted my last blog l received a call from Kings asking me to go in for another “DLI”. In layman’s terms, a top up of Heathers white cells. These were harvested from Heather several months ago and eight little bags were frozen
for use at a later date.
This is my second bag. We are hoping these extra cells will put my own remaining rebellious cells to bed and turn things around . I feel it’s a little like calling in extra troops. This little bag contains over 5 million cells… Just white cells and not to be confused with stem cells although the process of harvesting them is similar as you would have seen on a earlier blog. It will take a bone marrow test to get the full picture which l will have at the end of the month.
It’s now eighteen months since l started treatment, everyone has different ways of coping. I feel it is sometimes harder on my family and friends because l can be very blunt when talking about my cancer. We all know we are going to die but when you are faced with circumstances that could mean it is earlier rather than later one looks at things very differently. As you know my doctors are working so hard to turn my treatment into a success but l think it is challenging at times. My consultant is very straight forward with me, she has got to know me well and appreciates l like as much information as possible. I have an urgency to get things done even though my brain
works faster than my body. I know we hear people talking about bucket lists, but l struggle with this – so far it’s only got the ability to eat smoked salmon and salad on it. Being neutropenic l need to be at a certain level to freely eat some items because the bacteria they hold could enter my blood stream which could potentially make me very sick.
As a transplant patient one can get many side effects, in my case l have had many eye infections. I was sent to the eye specialist to get checked this week and when the doctor asked me my age l said 57.. So the chemo has affected my brain as well,
I knocked off a couple of years ! We did have a chuckle over this but of course l was this age when l started treatment. I find the mind blocks out many things and is particularly good at blocking negative memories, l sometimes forget l spent nine months in hospital last year when accounting for time. Eyes are ok, the doctor feels the excessive rounds of chemo may have had a negative effect. It is not surprising, nine rounds of chemo,some very aggressive over the past months …. that’s a lot of nasty chemicals going through the body !
I wouldn’t like one to get the impression that l am beginning to struggle with my circumstances, although living such a limited life can be depressing at times. My blog has become a diary for me and it is sometimes difficult to take on board the extreme
life change that has occurred, after all it was only just over two years ago l was hopping on a plane almost weekly with my job. Now, as l still live under the Heathrow flight path l have turned into a plane spotter, guessing the airline logos as they go over head !
When people ask me how l am l want to reply ” still here !” which of course would not be politically correct… but the truth is that without my treatment so far l probably in fact most certainly would not be, so the battle goes on. I know my coping ability is so much easier not only because of my family and friends but also the thoughts and prayers so thank you !